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Mia, 11 years. Her lungs are rapidly deteriorating

maginifier
Campaign

Medical

Mia, 11 years. Her lungs are rapidly deteriorating

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Lena Fahed Created this campaign
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ID # 705
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Created on 24-03-2023
Mia Abou Zeidan was born on June 4, 2011, diagnosed with cystic fibrosis تليف رئوي at birth, is a carrier of a heterozygous composite Delta F5 108 and S4X CFTR mutation.



We, doctors, discussed the use of recently available CFTR modulating therapy with the family. This treatment could significantly improve respiratory function. Given the very high price of this treatment intended to be continued for years, the family is looking for help in obtaining it.

The recommended treatment is “Trikafta”, “Kaftrio” or “Trixacar”.

The cost of which in Lebanon amounts to more than $6,000 (as per the attached medical report) per month and we are doing our best to afford the generic it will be more cheap.


We, Mia and family thank you for the help you could provide to us since Mia respiratory condition is gradually deteriorating and whose medium-term prognosis is compromised.

You donation will bring her breathe back, Please help our daughter.



ولدت ميا أبو زيدان في 4 يونيو 2011 ، وتم تشخيص إصابتها بالتليف الكيسي عند الولادة ، وهي حاملة لطفرة مركب متغاير الزيجوت Delta F5 108 و S4X CFTR.



ناقشنا نحن الأطباء مع العائلة استخدام علاج تعديل CFTR. وهذا العلاج يمكن أن يحسن وظيفة الجهاز التنفسي بشكل كبير. نظرًا لسعره المرتفع فإن الأسرة تبحث عن المساعدة في الحصول عليه.

العلاج الموصى به هو تريكافتا أو كفتريو أو تريكساكار.

تبلغ تكلفته في لبنان أكثر من 6000 دولار (حسب التقرير الطبي) شهريًا ونحن نبذل قصارى جهدنا لنؤمن البديل عنه وسعره أرخص.


نشكركم على المساعدة التي يمكن أن تقدموها لإبنتنا لأن حالة جهازها التنفسي تتدهور تدريجيًا.

تبرعكم بالقليل سيعيد لها أنفاسها.

Organizer

Donation

Lena Fahed

ZAHLE

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